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January 28, 2012




Survivorship, Quality of Life & Rehabilitation SIG

On this SIGs Virtual Community page, you will find information pertaining to the Survivorship, Quality of Life & Rehabilitation SIG. Here, you can view myriad resources, download and complete pertinent documents, join in our discussions and much more. Welcome to our SIG online.

ONS Launches Survivorship Initiatives
The Oncology Nursing Society (ONS) is addressing the probelm of patients with cancer experiencing symptoms after treatment ends.

3rd annual Harvard Medical School CME Course Cancer Survivorship for Clinicians: Helping Survivors Live Well Beyong Cancer & annaul LIVESTRONG Survivorship Leadership Training Institute   October 20-23, 2011  Click here for more information 



2012 Survivorship Research Conference & Survivor Advocate Program

Registration is NOW OPEN for the 2012 Survivorship Research Conference and Survivor Advocate Program

The National Cancer Institute’s Office of Cancer Survivorship, the American Cancer Society, LIVESTRONG, and the Centers for Disease Control and Prevention are bringing together researchers, clinicians, cancer survivors, advocates, program planners, policy-makers, and public health experts to present, discuss and disseminate groundbreaking cancer survivorship research. The 6th Biennial Cancer Survivorship Research Conference, entitled “Cancer Survivorship Research: Translating Science to Care,” will be held on June 14-16, 2012, at the Crystal Gateway Marriott in Arlington, Virginia.

Applications are now being accepted for the Survivor Advocate Program, which provides scholarships for up to 20 advocates to attend the conference. Advocates will learn first-hand about translating cancer survivorship advances from early-stage research to survivor care, interact with other advocate leaders and researchers, and develop tools to educate communities about key survivorship issues.

Program Elements:
In addition to attending the full research conference, participants in the Survivor Advocate Program will participate in the following activities:

  • Two pre-conference orientation teleconferences
  • A three-hour pre-conference advocate session on the first day of the conference
  • Targeted talks by prominent cancer survivorship researchers and practitioners
  • Networking with researchers and other advocates
  • Debriefing sessions to plan dissemination strategies based on knowledge and information gained

Program participants will be selected on the basis of their research advocacy experience, the potential impact conference attendance will have on their future advocacy work, and the strength of their proposed use of tools from the conference for community education. Priority will be given to applicants who have not participated in the program previously.

Applicants should have direct experience with cancer – either as a survivor, family member or caregiver of someone with cancer, or health care professional with direct patient/survivor contact. They should also be affiliated with a cancer advocacy organization; demonstrate a minimum level of interest in and familiarity with cancer survivorship research; and have at least one past experience in research advocacy (e.g. reviewing cancer research grant applications, attending a cancer research meeting, etc.). The deadline to submit a scholarship application is January 17, 2012, at 11:59 p.m. EST. 

The scholarships, awarded by LIVESTRONG, provide funding for the conference registration fee, hotel, transportation, and meals. Applicants should not make any travel plans until they are notified of acceptance  into the program and receive specific instructions regarding travel arrangements. Please note: the Survivor Advocate Program can only accept applications from advocates residing in the United States.

Please visit http://www.cancer.org/subsites/Survivorship2012/survivor_advocate_program to submit an application for the Survivor Advocate Program. For more information about the 6th Biennial Cancer Survivorship Research Conference, contact Kalina Duncan at kalina.duncan@nih.gov.



Call for Traveling Companions Bloggers

Join Patients and Caregivers on the Cancer Journey!

We’re looking for oncology nurses to write for Traveling Companions, ONS’s patient- and caregiver-focused blog. If you’d like to share your thoughts and comments to support patients and caregivers on the cancer journey, please email us at socialmedia@ons.org for consideration.



Final Draft of Cancer Program Standards Available for Public Comment

The American College of Surgeons Commission on Cancer (CoC) is in the final stages of compiling its new standards manual: Cancer Program Standards 2012: Ensuring Patient-Centered Care, which is scheduled for release in July 2011. Diane M. Otte, RN, MS, OCN®, the ONS liaison to the CoC, reports that the new standards focus on quality, patient-centered care, addressing key issues such as psychological distress, patient navigation, palliative care, and survivorship, among others.

The standards continue to be open for public comment while the CoC pilot tests them in 50 different survey sites. To provide feedback, use the 2012 Cancer Program Standards wiki on the CoC website.

To learn more about the revised standards, plan to attend a session at the ONS Annual Congress in Boston, MA: “New Commission on Cancer Standards: Demonstrating Outcome Measurement Through Multidisciplinary Care,” scheduled for April 28 at 3:45 pm. Otte will be presenting with Luana Lamkin, RN, MPH, and Frederick Greene, MD.

Otte will also be available to discuss the standards at the Management and Program Development SIG meeting scheduled for Saturday, April 30, at 10:30 am.

The CoC will use several methods to educate and disseminate the standards, including a webcast series scheduled for April, YouTube videos dedicated to each of the 34 standards in August/September, and use of a new Best Practices Repository to be available in September. The guidelines will be effective beginning January 2012.

The CoC Accreditation Program is a voluntary commitment designed to encourage hospitals, treatment centers, and other facilities to provide quality care. Programs undergo evaluation and review every three years. According to its website, more than 1,480 CoC-accredited programs diagnose and treat 80% of newly diagnosed patients annually.

The CoC’s Cancer Program Standards are updated every 5-7 years to reflect changes in cancer care. The current standards were last completely revised in 2004.



Resources relating to Survivorship

Check out the ASCO website under SurvivorshipMultiple resources are available for patients at the ASCO website www.cancer.net under the survivorship section.  These include podcasts, managing side effects and action steps including helping patients to become patient advocates in the cancer community and assistance with setting up lifestyle goals to improve nutrition and physical activity.  A section on CANCER TREATMENT SUMMARIES provides resources that patients can download and complete with their oncology health care provider. 

Here are a few other resources for cancer survivors that you and your patients may find helpful

American Cancer Society, www.cancer.org 

Cancer Care, www.cancercare.orgCancerCare provides counseling, online and telephone support, educational information and financial assistance to patients, families and caregivers who are dealing with all types of cancer. 

Cancer Hope Network, www.cancerhopenetwork.orgthe Cancer Hope Network provides free and confidential ono-on-one support to cancer patients and their families.  All of its support volunteers are specially trained cancer survivors.C

ancer and Careers, www.cancerandcareers.orgCancer and careers provides support to women who are either working during cancer treatment or returning to work after treatment.  The organization’s website hosts discussion boards on which women can talk to career coaches about the challenges they face returning to the workplace.

Fertile Hope, www.fertilehope.orgFertile Hope provides information about fertility and fertility risks to cancer patients and survivors.  They provide an online message board on which individuals can discuss fertility issues with others facing similar challenges.

Lance Armstrong Foundation, www.laf.orgThe LAF focuses on its activities on survivorship education and resources, community programs, national advocacy initiatives and scientific and clinical research grants.  The website features a variety of information and resources for people living with cancer. 

National Coalition for Cancer Survivorship, www.canceradvocacy.orgNCCS offers online resources for cancer patients.

Oncolink, www.oncolink.comOncolink is a website of cancer resources operated by the University of Pennsylvania.  It provides information on cancers by type and cancer treatment options.  The website has an Ask the Experts page through which survivors can pose questions to the University of Pennsylvania’s team of cancer experts. 

There are many other resources which we are not able to include.  If you have any suggestions, please let us know.



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